Celine Dion says dealing with incurable diagnosis ‘one of the hardest experiences’ of her life

Celine Dion, the iconic Canadian singer known for her powerful voice and heartfelt ballads, has recently opened up about the profound challenges she faces following her diagnosis with Stiff Person Syndrome (SPS). At 55, Dion describes dealing with this incurable condition as one of the hardest experiences of her life.

A Courageous Revelation

In December 2022, Dion revealed to her fans that she had been diagnosed with SPS, an autoimmune and neurological disorder that causes severe muscle rigidity and spasms in the torso and limbs. The announcement was accompanied by the difficult decision to cancel her world tour, a move that underscored the seriousness of her condition.

Raising Awareness and Offering Support

On SPS Awareness Day, Dion took to Instagram to share a heartfelt message along with a photo featuring her three sons. The image captures a joyful moment on a racing podium, where Dion is seen with her arms around her children, all smiling and holding trophies. This public display of family unity and support speaks volumes about the strength she draws from her loved ones.

“Today the world recognizes International SPS Awareness Day,” Dion wrote. “As many of you know, in the fall of 2022, I was diagnosed with Stiff Person Syndrome (SPS). Trying to overcome this autoimmune disorder has been one of the hardest experiences of my life, but I remain determined to one day get back onto the stage and to live as normal of a life as possible.”

She continued, “I am deeply grateful for the love and support from my kids, family, team, and all of you! I want to send my encouragement and support to all those around the world that have been affected by SPS. I want you to know you can do it! We can do it! Love Celine xx…”

A Rare Public Appearance

Dion’s resilience was further highlighted last month when she made a rare public appearance at the Grammy Awards. Receiving a standing ovation, she presented the Album of the Year award to Taylor Swift for “Midnights.” Before doing so, Dion took a moment to honor music legends Diana Ross and Sting, who had presented her with the same award 27 years earlier.

“Thank you all, I love you right back,” Dion told the audience. “When I say I’m happy to be here, I really mean it from my heart. Those who have been blessed enough to be here at the Grammy Awards must never take for granted the tremendous love and joy that music brings to our lives and to people all around the world.”

Understanding Stiff Person Syndrome

SPS is characterized by rigidity in the torso and limbs, along with episodes of muscle stiffening and spasming. These symptoms can be exacerbated by environmental stimuli, such as loud noises, and tend to subside once the stimuli are removed. Although there is no cure for SPS, treatments like muscle relaxants, sedatives, and physical and occupational therapy can help manage the symptoms.

A Message of Hope

Celine Dion’s openness about her battle with SPS shines a light on this rare condition and offers hope and solidarity to others affected by it. Her determination to return to the stage and live as normally as possible, despite the significant challenges she faces, serves as an inspiration to many. As she continues to navigate this difficult journey, Dion’s gratitude for the support from her family, fans, and medical team remains a testament to her enduring strength and resilience.

In her own words, “We can do it!”—a powerful message of unity and encouragement to all those living with SPS.