Celine Dion is opening up about how music has motivated her through strenuous physical therapy for stiff person syndrome.
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Celine Dion, the iconic voice behind timeless hits like “My Heart Will Go On,” is opening up about her journey with stiff person syndrome, a rare and debilitating neurological condition. Dion shared how music has become her lifeline as she navigates the rigorous demands of her physical therapy.
“It’s a lot of work,” Dion revealed, describing the intensity of her daily routine. “I didn’t fight the disease; it is still in me and forever.” Her words reflect a poignant acceptance of her condition, as she continues to search for answers through scientific research. “We will find, I hope, a miracle, a way to cure it, but I must learn to live with it. So that’s me, now with stiff person syndrome,” she added.
The Grammy-winning singer has channeled her determination into a strict regimen of athletic, physical, and vocal therapy. “Five days a week I do athletic, physical and vocal therapy. I work on my toes as well as my knees, calves, fingers, singing, voice…” she shared, emphasizing the holistic approach she has taken to maintain her health and vocal prowess.
Dion’s journey has not been without its emotional challenges. Reflecting on the early days of her diagnosis, she admitted to questioning the fairness of it all. “At the beginning, I blamed myself and was searching for answers on the ‘why’ of it all,” she confessed. “Life doesn’t give you answers. You simply have to live it! I have this disease for some unknown reason.”
Faced with the harsh realities of her condition, Dion found herself at a crossroads. The choice, as she saw it, was stark: either she could train like an athlete, pushing her body and voice to their limits, or she could retreat into herself, living in the shadow of her former glory.
“I have two choices,” she said. “Either I train like an athlete and I work super hard or I disconnect and it’s over, I stay at home, I listen to my songs, I stand in front of my mirror and I sing to myself.” It’s clear that Dion has chosen the path of resilience. “I chose to work with all my body and all my soul, from head to toe with a medical team,” she declared, highlighting her commitment to being her best self.
Dion’s ultimate goal? To see the Eiffel Tower again. This simple yet powerful ambition encapsulates her enduring spirit—a woman who refuses to let a diagnosis define her. Through her unwavering dedication to therapy and her love for music, Celine Dion continues to inspire millions, proving that even in the face of adversity, the human spirit can prevail.
As she continues her journey, fans around the world stand with her, cheering on her efforts and hoping for that miracle. And while the road ahead may be challenging, Dion’s resolve remains unshakable: to keep singing, keep fighting, and keep living life to the fullest.